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WHO IS DOING THE RESEARCH

Seema Lal is a psychologist and special educator by profession. She is currently registered as a part time Ph.D. student with the Vrije University, Amsterdam. She is also the co-founder of a child rights advocacy group "Togetherwecan".

The study focuses on four influences:

  • 1. Role of own personality knowledge,

  • 2. Role of significant others,

  • 3. Role of professionals,

  • 4. Role of government

Each influence is studied for each of the four phases of the journey:

  • A. Child birth to diagnosis,

  • B. Diagnosis to therapies,

  • C. Schooling years,

  • D. After school years.

WHAT DOES PARTICIPATION INVOLVE

  • 1. Be willing to share your journey as a mother with the researcher.

  • 2. Be ready to be interviewed face to face or over the telephone at a time and place mutually convenient (Interview will be recorded).

  • 3. Be prepared for the interview to last 30 to 45 minutes.

  • 4. Be assured that the data will be used only for the purpose of research, and that it will be shared only with the supervisors and co-supervisor of the research.

  • 5. Be convinced that all personal information will be made anonymous.

  • 6. Be conscious that you can withdraw consent to participate at any point of time.

WHO GUIDES THE RESEARCHER

  • Prof Dr. Joske Bunders

  • Prof Dr.Vandana Gopikumar

  • Asst Prof Dr.Elena Syurina

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